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PROJECTS

RESIDRAS

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National Registry of Dravet Syndrome and other SCN1A and PCDH19 Gene Mutation Related Syndromes

DAND

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Creation and validation of an ad hoc scale for Dravet Syndrome

AWARD

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In memory of Luca Ferrara and Mattia Riva, the award aims to enhance research and make known the Dravet Syndrome 

NARRATIVE MEDICINE

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Narrative Medicine, a clinical assistance methodology based on a specific communicative competence, represents a phenomenon with interesting sociological peculiarities. 

KETO ITALY

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Research Group born with the intention of promoting the knowledge of Diet Therapy

PLATFORM-RESIDRAS

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International Registry of Dravet Syndrome and other Syndromes correlated with genes on SCN1A and PCDH19

SURVEYS

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Given the importance of the data collected by the surveys, it is  decided to actively participate in the dissemination and sponsorship of various surveys

EMERGENCY CERTIFICATE

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Emergency Certificate aims to provide hospitals with a single protocol to be used in the event of an emergency in patients with Dravet Syndrome.

SADS

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Record the sleep of Dravet syndrome patients for 7 days with an actigraphic recording device, based on a validated and certified algorithm

CREP

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Increase research with the collection and analysis of clinical data and training of researchers with courses and meetings

DRAVET DIARY

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The online diary for patients with Dravet syndrome

INCLUSION PROJECTS

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Promote social integration and the sharing of training activities for the benefit of young people with cognitive disabilities

EJP RD

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The European Joint Program on Rare Diseases is a European project on rare diseases

ANALYSIS OF THE PATH

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International research group: Study and definition of gait patterns in subjects affected by Dravet Syndrome

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Recognized as legal personality with provision of the Veneto Regional Council of 09.12.2015 n ° 815.

Agreement with the AOUI of Verona Prot. 1306 of 12/01/2021. Approved with Resolution no. 1392 of 12/30/2020

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Contact us

📨 : info@dravetitalia.org

📞       : +39 3453589662

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